Expecting the Unexpected – IVF/Preemie/Toddler

January 31, 2010

Birth to home

Filed under: Archives — shazz @ 10:19 pm

Well as you know my little man was born at 25 weeks weighing 845g.  He was doing really well for the first week and a half, went from a ventilator (tube down the throat), to CPAP (prongs in the nose) which is fantastic for a baby who was virtually born with no lungs.  Unfortunatly he got tired and caught a bug.  This then lead to several more bugs and then pneumonia, then his lungs started to collapse so he had to be put back on the ventilator with his oxygen continually being turned up.  Every day one of his lungs collapsed, then one would re inflate and then collapes the next day and so on.  At one stage his oxygen was on 100% which means it can’t be turned up anymore and most likely could lead to brain damage, brain bleeds, hearing being effected and eye sight as well.  We were called in twice to say goodbye to him.  You would leave him at night and he was good only to ring in the morning and he had had a bad night and gone down hill.  I remember after one call we got up straight away to get ready only for my husband to pick me up off the floor in the laundry as my legs gave way I was crying that much.

One day one of the Drs told us the only step that was really left was to give him steriods but there were possible side effects with the main one being cystic fibrosis, but we didn’t care we just wanted him alive we would deal with anything that was wrong with him.  We signed the form to give the steriods and they were given straight away and over a course of what we thought 9 days.  He almost turned a corner straight away and we thought this was it this was all he needed, but then devestating news….his oxygen started to be turned up again and he caught another infection, I’ll be honest I thought that was it, I thought there was nothing else they could do i just cried and cried.

They decided to bite the bullet and pull the breathing tube as it had been down his throat for 6 weeks and they knew it would be full of gunk so they said it might help with a new one and as much as they don’t like retubing a baby as it causes dramatic stress to them they thought they would pull it out, but then made the choice before they did that that they would try him on a less powerful breathing maching and see how he goes and bugger me he started improving, it was almost like he said about bloody time you put me on this other machine.  Before we knew it a few days later they pulled the tube out which I must say scared the crap out of me.  We were told not to expect him to last as he will probably get tired but we will give it ago and see how long he can last….. it was like he stuck his finger up and said I will show you and he never went back to be tubed and just had the prongs up the nose.  It was almost like he was just saying about time that’s all I needed.

He started to grow nicely, graduating from an incubator to what they called the big boys bed or open cot.  I remember walking in one morning, all the nurses looking at me and there he was in his open cot……I was so excited I had to run out and ring Nathan to tell him.  It was the best to be able to lift him in and out of his cot, to touch him, to hold his hand all the time, for him to look at us without the plastic inbetween us.  Then the biggest surprise was when he moved up bays.  Bays were the rooms they were in.  Bay 7 &8 were NICU, 6 was still NICU but not so dependant then bays 5, 4 were where they still had babies who needed assistance with breathing, or still needing special care, then Bay 3 was called SCN or special care nursery and bay 2 & 1 were OMG we’re nearly home!  I walked in as I did every day and he wasn’t there, it’s the worst feeling ever, the nurses said didn’t anyone ring me and that he had been moved to bay 6 and were so exciting for us that after 13 weeks of being in intensive care he was finally on the move. 

We spent several weeks in bay 6 and whilst I was driving into the hospital I got a call saying our beautiful boy had been moved all the way to bay 3, skipping 5 & 4 straight to special care.  For anyone that knows this system or has experienced it you will totally understand the whole thing.  He was now on low flow oxygen which was just normal air flowing through his nasal prongs and had to have times off air altogether to get his lung strength up.  This went on for a few weeks only for him to catch influenza off someone and we are tipping a staff member even though we were questioned and almost acused of it.  After being in hosp that long we weren’t dumb enough to put his health at risk, so that put his coming off oxygen behind whilst he got better.  Another few weeks went past, again as usual I walked in and nope he wan’t there OMG he had moved to bay 2 and his next step was to a level 2 hospital and closer to home.

After 17 weeks and 2 days before Christmas we got come fantastic news….he was being moved to a level 2 hospital which was now 45 mins from home and not the traveling of one hour and 10 mins one way.  It was such an emotional time to say goodbye to what had been our family for 17 weeks, we made some really good friends and that includes other NICU parents and nurses.  The nurse were our strength and without them I know sitting there day by day I would of lost it alot more than I did.  They so don’t get recognised for the work they do and I have to say they are my hero’s.  I travelled in the infant transport ambulance to our new home.

For the next month or so my day was the same, in to see my boy, spend the whole day with him just holding him and never wanting to let him go.  Before he was allowed home he had to do what was called ‘air tests’ and that mean’t he he had to last off oxygen with his own oxygen levels staying at a certain %.  He failed the first one, thena week later he did another one but it wasn’t good enough, the following week he passed but his Repiratory Specialist wanted him to do one more to be safe.  Now we always did the tests when he was asleep because that way he wouldn’t fidget around.  The fourth test started off well but he woke up and I started stressing the the max and got all upset, but you know what….. it was the best he ever did, he kicked arse.  That was the tuesday and then on the friday his Resp Dr came into see us and we got the news we had been so longing for…….he was going home!!

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Filed under: Archives — shazz @ 1:11 pm

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January 29, 2010

Time to come back.

Filed under: Archives — shazz @ 1:42 pm
Funny you know I have actually missed Blogging but have had so much keeping me occupied!  I think it’s sad I let this go as it was for my first born to read everything we went through to conceive, which I did but now I have missed out on the first yr of his life for him to read. 
I know I will have lost alot of readers but am hoping to find new ones too.  I would love to share with you the first year of my sons life and the way he fought every minute to be here. 
 
This is my son Maxx who was born at 25w on the 24th Aug 2008.  He was the result of 6 1/2 years of trying and 11 IVF transfers.
You would never know that he was a premmie baby and even the medical proffession say the same.  He is developing normally and reaching all his milestones with the latest one taking his first steps and walking around furniture.
I am going to leave this post now and start my updates for anyone interested in reading them.

October 6, 2008

First Post after giving birth at 25 weeks

Filed under: Archives — shazz @ 11:06 pm
I am sorry it’s taken so long to post but as you could understand I spend nearly all my days at the NICU with our Beautiful Boy.  The post that will be going up are some entried from my journal and others are just posts to groups.  It has been 6 weeks since Maxx was born and I have to admit a very long 6 weeks.
 
I went for my 18 week checkup in July and mentioned a few things that had happened such as a bit of pain, some mucus loss etc.  My OBS had a bit of a look only to discover that my waters were buldging.  I was sent straight to hospital for a stitch only to be told there was no bed and I had to go sit in emergency, not lie down but sit.  We rung our OBS who rung the hospital and I was put in a bed in the emergency dept.  It took over 5 hours for the surgeon to come and see me only for him to shove the speculum so far into me that I thought it was going to cut me in half.  The Dr told me that I was leaking fluid and there was nothing he could do……….. we were devestated and couldn’t belive we were going to loose another child.  They put us into a private room to start grieving I guess.  DH just sat in a chair and looked out the window all night and I think I just fell asleep wiith pure exhustion. 
The next morning no one had come to see us and we had heard nothing so he rung my OBS, told him that they wouldn’t do the stitch and what do we do now.  Our OBS told us to discharge ourselves and go to the Royal Womens Hospital to which we did.  The Royal Woman were fantastic and caring.  They put me under and put in a McDonalds stitch and I was left to rest for a week and a half where they would monitor infection.  At nearly 20 weeks I was told they were sending me back to the hospital that wouldn’t do the stitch till I reached 24 weeks as my pregnancy was classified as “viable”.  That is such a horrible term and I hate it, if I can feel my child moving how can it not be viable!!
I stayed at that hospital for over 3 weeks with daily blood tests to monitor infections, 2 scans a week, daily fluid loss, bleeds etc.  At 24 weeks I was sent to yet another hospital that had the facilities to deal with a premmie baby.
The above is only a very brief version of what happened as you could understand it would take me a very long time to type everything, every emotion, tear etc we went through.
 
 
 

I’m home after 7 1/2 weeks in hospital and it all feels a bit strange and first time online too. The house seems like a florist and gifts have started but seems strange cause he is not here for them.

First of all both Nathan & I want to thank everyone from the bottom of our hearts for all the love, well wishes, support, sms’s, phone calls, prayers etc. It has been the hardest 7 weeks of our lives and there were times I was ready to give in but there was a little person that kept me going oh and the crosswords, games etc .

His name Maxx Cooper Garnet. He was born 10.07am Sunday 24th August through emergency C-section at 25 weeks due to a cord prolapse and he is the love of our lives. He was 845g, 32cm long and every day we get told how big he is for his gestation, infact for the first couple of days I was asked if my due dates were right and as he was IVF yes the dates were right. We had chosen Maxx as a boys name when we were having Chloe over 2 1/2yrs ago but his middle name was going to be Oscar but I loved Cooper and felt it was a strong name.

I had had alot of pain on saturday afternoon, went and had a shower and the bottom of my tummy felt heavy and hard, told Nathan when I got out, asked for pain relief and sooked most of the night. At about 1am woke with a stinging pain but I pushed through it with drugs. 3am called for a nurse, she felt for contractions but couldn’t feel anything. They gave me a sleeping tablet as I hadn’t slept for 3 nights due to a mass snorer next to me (Monash don’t give pre mummies single rooms you share with 3 others, guess I was spoilt at Frankston and Royal Womens). Woke up at 8 for breakie and all pain was gone which I thought was strange. A Dr came in to see me, he left, I got up to go to loo and felt something between my legs went into the loo and saw the cord hanging out. I went flying back into bed rung for a nurse and next thing I know a major code was going off, nurses and the Dr came running in, chucked me on all fours the Dr shoving his hand inside me pushing the cord back up, a blanket being chucked over me and the bed being flown straight into surgery, my head in the pillow and the Dr telling me it will be ok an he can still feel the pulse in the cord. I could see Dr’s and nurse coming from everywhere as they had to have a team for me and the NICU Dr’s for Maxx. I had to have both hands out as they were trying to get a drip in my hands and would use which ever went in first. I was flipped onto the bed and less than a minute I was out and Maxx was out in less than 3 minutes and took his own first breath. They have less than 10 minutes to get a baby out to survive when this happens and the Dr told me later that these are rare now and he has done 3 this yr which is more than he has done in a couple of yrs. Poor Nathan wasn’t there and didn’t know that this was happening as he was on his way to visit me. Next thing I know I was waking up and Nathan said we have a son and I have to say the rest of the day was a blur. I had a T cut which means they had to cut me from my belly button to my pubic area inside due to the scar tissue plus from one side of my tummy to the other on the outside.He is on a ventilator but only needing 25% oxygen which can fluctuate from day to day but tares at your heart when it needs to be pushed up a little but I just have to remember he is less than a week old.
All the NICU Dr’s and nurses are worth their weight in gold and comment nearly every day on how active he is and wriggles around so much. I got to change his nappy and do his temp yesterday for the first time. He is starting to take my colostrum and has 1ml every 2 hrs now. He is in what we call a chook bag which is a plastic bag that covers him to keep him warm and his skin soft and they are hoping to move him to a humidy crib very soon. He has big feet and hands but yet so small. He is off most of his medication such as high blood pressure, toxin meds etc, lets just say he was on 8 bags of meds and now down to 2 with one of them being antibiotics as I might have given him a bug through the stitch I had.

We are just so proud of the fight he has put in over the past 7 weeks to stay put and prove so many people wrong and mostly being the Dr’s who at Frankston admitted that they didn’t think we would make it past the 2w mark and to our surprise our EX obs who told Nathan the same. We only heard from him once through this whole thing which is why I say EX.

We have a long road to still travel and anything can still happen at anytime but for today he is having another good day and that we thank god. I am very emotional right now and miss him so much at night, I am scared to go to sleep sometimes as I worry something will happen when I am not there but we know he is in the best possible care and we can ring or go in at anytime of day/night. The main worry for a premmie is brain hemorrhage or lung problems at anytime.

I have to say my life has changed forever in so many ways and most of it has come from laying on my back for 7 weeks with only toilet privileges and only 2 major breakdowns. I didn’t think I would have it in me but I guess when your fighting for a life you will do ANYTHING!
If I don’t reply with sms’s right now please understand that I am with our little man or just tired. I can’t drive for 6 weeks and this first week not allowed home alone so its hard relying on others to get me to Monash which is over an hr away.

Nathan just rung me and he has been put into a humidy crib which means he has graduated. I am so proud of him.


 

 

September 6, 2008

Alot has happened

Filed under: Archives — shazz @ 9:36 am

Well alot has happened over the past 9 weeks including the birth of our beautiful son Maxx Cooper at 25 weeks.

I will be back shortly to write our mini book of what has happened.

June 29, 2008

17 weeks

Filed under: Archives — shazz @ 9:16 pm

I managed to get hold of a computer and so sorry for no updates.

I am 17 weeks and we made it past another mile stone as it was the day I gave birth to our Angel, so you could say I have never been this far along before.  I am now in maternity clothes, the stretching has settled a bit and the best news ever…….. . I think I felt bub move on Monday and it was the best!!  My FS also phoned me last Friday to check up on me and see how things were.I have all my appointments in 2 weeks, first my 18w OBS, then my 18w scan and then an appointment at the hospital.  I have to say I am hanging out for the scan.  I will post a pick today of my new bump that I love to let hang out, its the one time I don’t have to hold my gut in lol.
 
I had a fainting spell this week. I went into my old store to visit the staff and it was so warm and yep i went giddy and had to lie on the floor, was so weird the way it came over.  Also I have been waking at 3am because i am hungry as, I think this baby is super sizing its food and I tell ya its bad enough having to pee all night let alone being woken up cause I am friggin hungry!!

 

 I have been getting some sharp pains down below and of course freak out everytime I feel a sharp one.  I just think its all going to happen all over again, I really think myself into the whole thing and then have to pull myself back and say no, no its not going to happen again but unfortunatly my brain wins over.  I am not even half way yet and every day scares me more and more, I just so want to enjoy this I desperatly do. 

I finish work in 4 weeks and I am so glad, I am just soooooooo tired and to be on my feet at work is killing me, yes easy sit down but its the mental thing of the job.  I just feel like I can’t get enough sleep.  I read in a book that we wee told to get as much sleep before bubs is born but as she said its starts before that because you can’t get comfortable in bed, your up peeing all night then it takes ages to get comfortable and fall a sleep again.  I think there should be a bed designed where you can pull a bit out of the mattress that your tummy can fit into……..can’t hurt!

Will update you as soon as can, hopefully will have a network card soon.

May 31, 2008

We’re ok.

Filed under: Archives — shazz @ 3:33 pm

Yes I know bad girl but I do have an excuse.  We have been house sitting for my hubbies boss and he forgot to leave his network card before he headed overseas for 6 weeks so I am going through big withdrawls right now and we still have another 4weeks to go argggggggggg.

I had a breakdown early this week as I felt pains lower down in my tummy but my OBS reasured me it was ligament stretching and maybe ripping.  But after the loss last time and remembering the pain then I just freak at any pain now.  
We lost our Angel in in just under 2 weeks time last time and its starting to do my head in, I wish time would slow a little.  They still can’t tell me why my waters broke last time and I just couldn’t handle it again infact I think that would be it for trying again.  But I have to think of this as a different pg and treat it as such………… yeah right, unfortunatly the brain wins over everytime!
Our OBs appointment was fantastic, he was so excited to see us back, infact when he was examining my tummy he was looking at me and said I am so happy for you two and you both so deserve this so much and he started welling which in turn set me off lol. Him and his wife have also been going through IVF which is one of the reasons I chose him 2yrs ago when we were pg with Chloe so we know he understands. He wants me to go and have a cervix scan at 14w as well as a UTI test again, back to have a 18-20 w scan with his radiology partner and the thing I was over joyed at……….. he kept me on the pessaries and proganova until nearly 15 weeks! I was so looking forward to getting off them and now another couple of sloppy weeks to go, but I know its all for a good thing. He has put me on the emergency scan list, so if for what ever reason something doesn’t feel right I can ring them and I can go in anytime for a scan.

Well we are 13w tomorrow and I have to say it is getting quicker. I had my Pre-natal bloods done last thursday, my NT scan done on Monday and my first OBS appointment on Tues.
The scan was great, just to see our little one lying there not over exerting itself but managed to raise a hand and thats all lol. We got to see little fingers, placenta pumping away and little limbs and for the first time the heartbeat. Unfortunatly bubaloo wasn’t moving for anyone no matter what, it was poked, proded and I even had to do a couple of sit ups but nope it was staying put but did mange to raise its hand to its face which we think could of been telling us to buzz off and let me sleep. The Dr said that it was all good and if bub stays like this it could mean we may have a sleeper on our hands when its born. I just think it was practicing holding the remote control………. so we are tipping boy lol. It was so diferent from when we had our scan with our Angel Chloe as she wouldn’t sit still, infact it took him 20 mins to try and measure her NT fold but not this one.

May 11, 2008

It has been a while

Filed under: Archives — shazz @ 4:13 pm

I am sorry I haven’t been in blog land for a while and yes everything is ok.  I have decided that this Blog won’t be password protected, what you see is what you get and after 6 yrs of trying for a Baby and the loss of one 2 yrs ago I want to continue sharing my journey.  If you don’t feel up to it I totally understand.

We had another scan last week at 9w 1d and bub is perfect.  Bean measured 2cm, strong heartbeat and good size.  Me on the otherhand has had night sickness which kicks in about 3 everyday, can’t eat chocolate of any kind is is devestated lol I mean I still have a fridge full of easter choocolate and I can’t deal with it, my pleasure is gone lmao.  I am very tired in the afternoons and could sleep where I am standing which is not a good thing as I work in retail lol but we have decided I will start Maternity leave on the 25th July when I will be 20w.  Honestly it’s only starting to kick in that this is real again well besides the constant stretching pains, tiredness and the neusea oh and not to mention the 3x400mg pessaries I have to insert everyday until 12w 2d.

One thing that is playing on my mind is the thought that in 4w 5d my waters broke with my Angel Chloe.  How do you get something like this out of your mind, how do you stop yourself from thinking its going to happen again??  I mean you have never been given a reason why it happened in the first place yet are told it may not happen again……… well what if it does, but what if it doesn’t and I pray everyday that it doesn’t.

 

April 20, 2008

Our First Scan

Filed under: Archives — shazz @ 6:14 pm

We have one perfect Bean on board with a heartbeat of just over 120 so I think Boy lol.  I have to stay on progesterone till 12w not 10 which is good. 

 

My FS has a bit of a concern about how we lost the baby last time as the only thing that shows is a UTI which means now I am on regular pee tests which is fine with me.  She also voiced her opinion that I should give up work, we sat and had a good chat about it and we totally understand what she is saying but we want to make it to 12w before we start thinking about that.  Man I would be ready to give up tomorrow lol, but the best thing is I think she has made DH really think about it and at this stage it probably be about July that I stop.  She just explained how important this PG is and as my waters broke for no reason at all last time that we could afford to risk anything.  She is willing to write anything in a letter to my employer about my duties, so she told us to go away and write one and she will type it up and sign it.

 

My FS is keeping me in her care up until I see my OBS with another scan booked for the 5th May and then she will sign me over and classify me as a possible high risk pg.

 

So now we take every day as it comes but for today we are absolutely beaming!

 

Thanks so much everyone again for your support and love.

 

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